Keep her in your thoughts please

  • prieser
    Byron, MN
    Posts: 2274
    September 1, 2009 at 6:54 pm #205958

    This is an email that I got from my sister in law. My niece is going through a little bit of rough time right now. How about some IDO helping thoughts.

    Hello! Just wanted to give everyone an update on Kaci’s condition. For those of you who didn’t know already, she is in the hospital to try and get her seizures under control with medication. She was brought by ambulance to the e.r. on Thursday night, Saturday morning, and Sunday night for having cluster seizures, some of which lasted more than five minutes. Kachi is diagnosed with Juvenile Myochlonic Epilepsy, which is just a seizure disorder that begins during teenage years. She will most likely live with this the rest of her life, but we are hoping we find some meds that will keep her from having the seizures so she can get back to some normalcy. Hopefully, if things go well today, she will be able to come home tomorrow (wednesday), so please keep your fingers crossed for her. We are also waiting to get more information on the MRI that she had yesterday. It looks as though there may be a spot on her brain that is of some concern (that’s what the doctors say) so they are going to compare it with the EEG she had done at the beginning of August to see if it has anything at all to do with her seizures. We will keep you posted when we find out more.

    Thanks everyone.

    wade
    Cottage Grove, MN
    Posts: 1737
    September 1, 2009 at 7:28 pm #57065

    Your niece and rest of your family and yourself will be in our thoughts and prayers, as I parent I dread news like that but the power of prayer and thoughts do magic! Hang in there!

    DANPEARSON
    Central WI
    Posts: 594
    September 1, 2009 at 7:35 pm #57066

    sorry to hear about the news Prieser. Our prayers are with your niece and family.

    jeff_heeg
    Marshfield WI.
    Posts: 479
    September 1, 2009 at 7:46 pm #57070

    Sorry to hear the news

    Your niece and family will be in our thoughts and prayers

    Jeff

    robstenger
    Northern Twin Cities, MN
    Posts: 11374
    September 1, 2009 at 7:47 pm #57072

    My family wishes her the best and will send out some prayers Prieser!

    mpearson
    Chippewa Falls, WI
    Posts: 4338
    September 1, 2009 at 8:02 pm #57079

    Prayers are on there way Prieser!

    LadyLuck1
    Sparta WI
    Posts: 46
    September 1, 2009 at 11:47 pm #57095

    My thoughts and prayers are with you and your family. I hope everything turns out for the best.

    lick
    Posts: 6443
    September 1, 2009 at 11:58 pm #57096

    Quote:

    My thoughts and prayers are with you and your family. I hope everything turns out for the best.

    me 2

    perchhead
    Posts: 329
    September 2, 2009 at 12:17 am #57098

    Our thoughts and prayers are wiyh you. I myself fought seizures up until the 3rd grade and was on vallium and some other meds until the eigth grade.

    perchhead
    Posts: 329
    September 2, 2009 at 12:18 am #57099

    I see you are from byron are going through the mayo clinic.

    packingheat
    Reads Landing Mn
    Posts: 696
    September 2, 2009 at 2:29 am #57109

    She’s in my heart and in my prayers.

    coppertop
    Central MN
    Posts: 2853
    September 2, 2009 at 2:55 am #57118

    Sorry to hear. Hope all turns our well for her and your family.

    big_g
    Isle, MN
    Posts: 22627
    September 2, 2009 at 4:11 am #57124

    Prayers said Prieser.

    Brad Juaire
    Maple Grove, MN
    Posts: 6101
    September 2, 2009 at 10:07 pm #57241

    Thoughts and prayers go out to your niece and the rest of the family! I hope the doctors can find the correct medication to help control the seizures.

    tony_p
    Waterloo, IA
    Posts: 1792
    September 2, 2009 at 11:33 pm #57254

    she is in my families prayers

    webstj
    Mazeppa, MN
    Posts: 535
    September 3, 2009 at 2:50 am #57292

    Sorry to hear Prieser. I have a cousin who is living with a form of epilepsy and has been suffering her entire life with seizures. At the age when they decided her brain was done developing and growing (I believe it was near age 20) they brought her up to the mayo clinic and they were able to “zap” some of the areas in her brain that had the neurons that kept firing erratically. From what I understand is they didnt cure the disease, but they were able to fix the bad areas and her seizures have disappeared to this point. I think she is going on 2 years now. I am sure my cousin is still on medication, and I believe it depends on locations of these reactions but if they can locate them and it is a safe area of the brain it can be very successful. Its a miserable feeling to think what your niece has to go through, my thoughts are with her, and I hope the docs can pull off another miracle.

    Wish her the best.

    prieser
    Byron, MN
    Posts: 2274
    September 3, 2009 at 3:20 pm #57380

    Well with any luck Kaci is turning a corner. From her mom today.

    Good morning all! I wanted to thank you for your support while kaci was in the hospital. We are waiting on her nuerology team right now, but she should b able to come home today since she hasn’t had any seizures for 24 hours. So, it is a good day so far. Hopefully these meds will help now and she can go on with her little teenage life as normal as possible. Thanks again for you love and support……it really makes a difference!!!!

    Thanks again for the prayers and thoughts, it’s working!!!!!

    mpearson
    Chippewa Falls, WI
    Posts: 4338
    September 3, 2009 at 4:48 pm #57388

    Great news Prieser…we’ll keep sending the prayers!

    lick
    Posts: 6443
    September 3, 2009 at 5:19 pm #57396

    good news

    jason_ramthun
    Byron MN
    Posts: 3376
    September 8, 2009 at 4:44 pm #57607

    Glad she is doing better Bob

    prieser
    Byron, MN
    Posts: 2274
    September 10, 2009 at 5:20 pm #57884

    Just a quick update. Kaci is still doing great, I finally got to talk to her today. She has not had a siezure since 09-01-09 But….she thinks that she will have to change her medication again (allergic reaction ) So, let hope the new meds will keep everything in check and no reactions either.

    I told her that I was really proud of her for keeping her spirits up. A 16 year old life has to be just hectic. It is hard enough to fit in these days and then throw in dating/boys/work/no car/mom and dad/friends etc, etc. She has grown up a ton in the last month. Keep the thoughts coming everyone.

    Brad Juaire
    Maple Grove, MN
    Posts: 6101
    September 10, 2009 at 6:08 pm #57894

    Thanks for the update Preiser. I’m glad to hear that Kaci is doing better. I agree – That’s a lot to go through for anyone much less a teenager.

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