Hospice and the crystal ball

  • Randy Wieland
    Lebanon. WI
    Posts: 13473
    #2296785

    Quite the reality check this week and taking a moment to refocus on life. Getting sucked into the political sewer is so easy and the endless accusations of both truths and lies leaves us wondering what to really believe.

    Well, I believe this. I’m almost 5 years of giving up my “normal” life to assist my father. The year prior, I did six months of care for my mother until her passing. I’ve blown my savings, exhausted the patience of my wife, passed 5 prime years of the best dog I could ever imagine having….and that list is about endless. Though I know that millions of people would kill for the opportunity I have to be by my mother and father’s side until their passing. To have all those conversations – as I recommend to so many people – Leave nothing unsaid. I’ve been blessed to have it all with my parents.

    This week is the “big change” his blood pressure is averaging 72/46. For those that don’t know, when you have low pressure, your pulse rate will usually increase. When both remain low AND the patient is hot and sweaty, its a really bad sign that the final stage is here. With it comes dizziness, loss of coordination, paranoia, huge sense of a loss of control, irregular breathing and more. As a care giver the stress increases because of their loss of control, false accusations are made, and doubt in what your doing.

    The nurse and social worker that comes each week had the talk with me. No surprises and I fully understand his death is coming. They have no crystal ball and can only compare his symptoms to others that endured the same fate. Likelihood is now within weeks, could be days, or could be a couple more months – only God knows. But the reality is setting in that these moments are VERY limited and its my last chance to do the best I can for him. Every ounce of patience is being tested. I’m finding strengths I didn’t know I had. Even going to his death, my father continues to teach me more.

    I share this only because I know I’m not alone. There are others out there caring for a love one that is reaching deep to do what they can. Its not easy, but so rewarding. To all the others going through this journey, know that the unsaid gratitude is beyond the frustrations, heartache, and issues. Each moment is an opportunity for another memory. In the times of frustration and mental exhaustion, isolate that moment and and put it in perspective. They lose control of rational thinking and behavior and deep down find solace in your care and love. Best wishes to all that are going through this.

    For others caught up in life’s struggles, please know you’re not alone.

    glenn57
    cold spring mn
    Posts: 11804
    #2296789

    i truly feel for you Randy……i went through it with my dad 20 + years ago. he had the RR asbestos cancer and it sucked the life out of you watching him suffer.

    i also lost mom a 1 1/2 ago to cancer..and in both cases i wish i could of done more, but in both cases it hurt real bad to see them suffer the way i seen them suffer.

    i too wish i had more time with them.

    only thing i can say is i hope for the best for you and your family….i know you did your best!!!!

    Mike Schulz
    Osakis/Long Prairie
    Posts: 1243
    #2296792

    bless you Randy, I cared for my wife when she went on different journeys, many surgery’s and the last one was with cancer.. everyone said I did a good job.. I had no idea what I was doing.. I just did what I felt was right for her.. when she passed there was huge hole for a long time..

    Randy Wieland
    Lebanon. WI
    Posts: 13473
    #2296794

    bless you Randy, I cared for my wife when she went on different journeys, many surgery’s and the last one was with cancer.. everyone said I did a good job.. I had no idea what I was doing.. I just did what I felt was right for her.. when she passed there was huge hole for a long time..

    I had a dream a while back about caring for my wife. woke up from a nightmare that really freaked me out. I’m content with my mother and father’s lives. Full lives and unbelievable memories made. No regrets on my part at all and I know its time with my dad. I can not imagine the mess I would be in if this was my wife. It would be the biggest part of me gone without her.

    Thoughts to you guys

    CaptainMusky
    Posts: 22702
    #2296796

    Randy so sorry to hear this! I went through the same thing with my mom (cancer instead) 2 years ago. In hospice for several months. Thankfully, being my wife was a teacher and off for the summer she spent the entire time with her. Having said that I was there every second I could. I was there the day she died, just not when she died. I kick myself, but there was really no way of knowing it was going to happen that day because it was just like any other day. Best wishes to you and your dad, I hope he passes peacefully and isnt suffering.

    Pailofperch
    Central Mn North of the smiley water tower
    Posts: 2918
    #2296804

    Stay strong Randy. I haven’t been in your shoes, yet. The day will come where I and many others will be. I’m sure being there and dealing with any tough situation, beats the regret of those that couldn’t or didn’t want to be there.

    Praying for your Dad’s soul and for your strength.

    Netguy
    Minnetonka
    Posts: 3173
    #2296815

    Randy, I saw your post in the ice fishing rod thread and it made me wonder how your dad was doing. I’m sorry to hear he is nearing the end. When I lost my wife to cancer almost 10 years ago, her biggest concern was if the kids and I would be OK. We assured her many times that we would be and the main reason was because of her.
    When my dad died, he went much quicker than the doctor thought and I didn’t get to have some of the conversations with him, like it sounds you have had with your dad.
    I wish you and your family the best and prayers will be sent your way.

    B-man
    Posts: 5792
    #2296818

    Randy this hits close to home for our family as well.

    My Grandmother passed away just yesterday at the age of 94.

    My Aunt stepped up to the plate and gave every ounce of time and energy needed for her over the last 10 years. Up until the last 6 months she had been doing quite well given her age. She lived with my Aunt who was able to run all of the errands, drive her to appointments, and the thousand other things that go with caring for an elderly person.

    You are a saint Sir, just like my aunt.

    One day I will proudly have my Dad move in when the time comes. As for my Mom…my sisters can handle that one mrgreen

    blackbay
    mn
    Posts: 870
    #2296841

    I’m sorry to hear this. I went through this in June with my dad. His girlfriend and I did what we could at home with a lot of help from hospice. During what turned out to be his last week, he needed 24 hour care to manage the pain and give nursing care we weren’t equipped to handle. Luckily we were able to find a place that provided end of life care that made him more comfortable. It’s exhausting physically and maybe more so mentally. God bless you and your family.

    wkw
    Posts: 723
    #2296844

    I know where you’re coming from Randy. I was there with my mom. She had a rare form of palsy that effected her speech and swallowing. I would drive 150 miles twice a week to hold her hand. Couldn’t hear or understand much of what she was trying to say, and I would be mad all the way home wondering what she was trying to say. But she had everything in order for when that day came. That helps a lot. I can tell you are a strong man Randy. Keep the faith. Prayers sent. WKW

    Timmy
    Posts: 1235
    #2296846

    Keep your chin up, Randy. Our families thoughts and prayers are with you.

    Mike m
    Posts: 237
    #2296847

    Thoughts and prayers Randy . I’ve been through this twice , once a long time ago when I was 15 , and didn’t handle it so well , and again many years later with a better understanding but still very hard . Hang in there

    Ben K.
    Posts: 124
    #2296850

    Thank you for writing this, Randy. Takes me back to moving in to my parents house to spend 8 weeks of hospice with my old man before he passed. Hardest time of my life but I wouldn’t trade it for anything.

    Your perspective is spot on. Allow yourself to feel relief and even joy when he is no longer suffering. And know that he appreciates you.

    cbeeksma
    Delta, WI
    Posts: 404
    #2296851

    Randy, 24 hour care of a loved one is one of the most difficult things a person can do. You are a Godsend to your parents with unwavering love for them and your family. Remember….forgive, never forgotten, I love you, I will be alright and Rest in peace. I have been a Hospice RN for nearly 25 yrs. Thank you for accepting the “extra” assistance they can offer. Lean on them if needed after your fathers passing. God Bless you!
    Chris

    Randy Wieland
    Lebanon. WI
    Posts: 13473
    #2296856

    I have been a Hospice RN for nearly 25 yrs.

    I hope enough families express the thanks you deserve!
    I’m a relatively difficult person to please. I generally have very high expectations and often assume others will elevate to the same. Company Agrace we has staff that is awesome. First time through with my mother, I was very content with I’ll take care of her and you guys just help me. At first, it was all the you don’t know…you can’t…blah,blah…nurse Tina told everyone to “shut up and Randy will do it and we’ll support him” That’s exactly how it went. last three weeks of up at every two hours, doing the meds, cleaning,…Tina made sure I knew everything I needed. When mom passed, Tina was like family and played a special role as she looked after my father and how he was handling it.
    We have a different nurse this time, but most of the same staff. Needless to say, they all remembered me and prepped Kourtney (nurse) on working with me. Little funny I think. They all think I’m nuts and and can’t believe the level of care I take on for my parents. But I can honestly look at my daughters and know with absolute certainty what their plans are for me.

    John Rasmussen
    Blaine
    Posts: 6334
    #2296881

    I had meant to reach out Randy. I was wondering about your dad. Sorry to hear the end is near, however it will stop the suffering and pain and his soul can rest. You have my number sir please reach out if you would like to talk. Once things are settled down I would love to take you up on your offer from years ago and we get out on the river and spend some time in a boat. Praying for you guys.

    Sharon
    Moderator
    SE Metro
    Posts: 5455
    #2296887

    Being a caregiver for a family member is a tough job, Randy, and my hats off to you and all you’ve done for your mom and your dad. They are lucky to have you as their son. Be sure to take time to take care of yourself too. Whatever you need to do to unwind, relax, and recharge. The care you give yourself is just as important as the care you give others! Hugs!

    Randy Wieland
    Lebanon. WI
    Posts: 13473
    #2296892

    Whatever you need to do to unwind, relax, and recharge.

    They have laws against that in this state – need to maintain a sense of humor or I’ll go crazy.

    John i’m about ready

    AK Guy
    Posts: 1390
    #2296908

    Your care for your parents speaks volumes of the man they raised.

    BigWerm
    SW Metro
    Posts: 11624
    #2296912

    We will keep you and your family in our prayers Randy. Thanks for sharing your story and experiences, many people won’t open themselves up to share these very real and difficult experiences, but I think we need more of it. Thank you.

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