Hospice and the crystal ball

  • Randy Wieland
    Lebanon. WI
    Posts: 13384
    #2296785

    Quite the reality check this week and taking a moment to refocus on life. Getting sucked into the political sewer is so easy and the endless accusations of both truths and lies leaves us wondering what to really believe.

    Well, I believe this. I’m almost 5 years of giving up my “normal” life to assist my father. The year prior, I did six months of care for my mother until her passing. I’ve blown my savings, exhausted the patience of my wife, passed 5 prime years of the best dog I could ever imagine having….and that list is about endless. Though I know that millions of people would kill for the opportunity I have to be by my mother and father’s side until their passing. To have all those conversations – as I recommend to so many people – Leave nothing unsaid. I’ve been blessed to have it all with my parents.

    This week is the “big change” his blood pressure is averaging 72/46. For those that don’t know, when you have low pressure, your pulse rate will usually increase. When both remain low AND the patient is hot and sweaty, its a really bad sign that the final stage is here. With it comes dizziness, loss of coordination, paranoia, huge sense of a loss of control, irregular breathing and more. As a care giver the stress increases because of their loss of control, false accusations are made, and doubt in what your doing.

    The nurse and social worker that comes each week had the talk with me. No surprises and I fully understand his death is coming. They have no crystal ball and can only compare his symptoms to others that endured the same fate. Likelihood is now within weeks, could be days, or could be a couple more months – only God knows. But the reality is setting in that these moments are VERY limited and its my last chance to do the best I can for him. Every ounce of patience is being tested. I’m finding strengths I didn’t know I had. Even going to his death, my father continues to teach me more.

    I share this only because I know I’m not alone. There are others out there caring for a love one that is reaching deep to do what they can. Its not easy, but so rewarding. To all the others going through this journey, know that the unsaid gratitude is beyond the frustrations, heartache, and issues. Each moment is an opportunity for another memory. In the times of frustration and mental exhaustion, isolate that moment and and put it in perspective. They lose control of rational thinking and behavior and deep down find solace in your care and love. Best wishes to all that are going through this.

    For others caught up in life’s struggles, please know you’re not alone.

    glenn57
    cold spring mn
    Posts: 11609
    #2296789

    i truly feel for you Randy……i went through it with my dad 20 + years ago. he had the RR asbestos cancer and it sucked the life out of you watching him suffer.

    i also lost mom a 1 1/2 ago to cancer..and in both cases i wish i could of done more, but in both cases it hurt real bad to see them suffer the way i seen them suffer.

    i too wish i had more time with them.

    only thing i can say is i hope for the best for you and your family….i know you did your best!!!!

    Mike Schulz
    Osakis/Long Prairie
    Posts: 1097
    #2296792

    bless you Randy, I cared for my wife when she went on different journeys, many surgery’s and the last one was with cancer.. everyone said I did a good job.. I had no idea what I was doing.. I just did what I felt was right for her.. when she passed there was huge hole for a long time..

    Randy Wieland
    Lebanon. WI
    Posts: 13384
    #2296794

    bless you Randy, I cared for my wife when she went on different journeys, many surgery’s and the last one was with cancer.. everyone said I did a good job.. I had no idea what I was doing.. I just did what I felt was right for her.. when she passed there was huge hole for a long time..

    I had a dream a while back about caring for my wife. woke up from a nightmare that really freaked me out. I’m content with my mother and father’s lives. Full lives and unbelievable memories made. No regrets on my part at all and I know its time with my dad. I can not imagine the mess I would be in if this was my wife. It would be the biggest part of me gone without her.

    Thoughts to you guys

    CaptainMusky
    Posts: 22167
    #2296796

    Randy so sorry to hear this! I went through the same thing with my mom (cancer instead) 2 years ago. In hospice for several months. Thankfully, being my wife was a teacher and off for the summer she spent the entire time with her. Having said that I was there every second I could. I was there the day she died, just not when she died. I kick myself, but there was really no way of knowing it was going to happen that day because it was just like any other day. Best wishes to you and your dad, I hope he passes peacefully and isnt suffering.

    Pailofperch
    Central Mn North of the smiley water tower
    Posts: 2901
    #2296804

    Stay strong Randy. I haven’t been in your shoes, yet. The day will come where I and many others will be. I’m sure being there and dealing with any tough situation, beats the regret of those that couldn’t or didn’t want to be there.

    Praying for your Dad’s soul and for your strength.

    Netguy
    Minnetonka
    Posts: 3141
    #2296815

    Randy, I saw your post in the ice fishing rod thread and it made me wonder how your dad was doing. I’m sorry to hear he is nearing the end. When I lost my wife to cancer almost 10 years ago, her biggest concern was if the kids and I would be OK. We assured her many times that we would be and the main reason was because of her.
    When my dad died, he went much quicker than the doctor thought and I didn’t get to have some of the conversations with him, like it sounds you have had with your dad.
    I wish you and your family the best and prayers will be sent your way.

    B-man
    Posts: 5739
    #2296818

    Randy this hits close to home for our family as well.

    My Grandmother passed away just yesterday at the age of 94.

    My Aunt stepped up to the plate and gave every ounce of time and energy needed for her over the last 10 years. Up until the last 6 months she had been doing quite well given her age. She lived with my Aunt who was able to run all of the errands, drive her to appointments, and the thousand other things that go with caring for an elderly person.

    My Aunt is a saint and you Sir are as well.

    One day I will proudly have my Dad move in when the time comes. As for my Mom…my sisters can handle that one mrgreen

    blackbay
    mn
    Posts: 865
    #2296841

    I’m sorry to hear this. I went through this in June with my dad. His girlfriend and I did what we could at home with a lot of help from hospice. During what turned out to be his last week, he needed 24 hour care to manage the pain and give nursing care we weren’t equipped to handle. Luckily we were able to find a place that provided end of life care that made him more comfortable. It’s exhausting physically and maybe more so mentally. God bless you and your family.

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